LIVING WITH LUNG CANCER: QUALITY OF LIFE AND SUPPORT NEEDS
Experiences reported by patients and their loved ones across Europe

Welcome and thank you for your interest.

By taking part in this survey, you are helping Lung Cancer Europe gain a better understanding of the needs of the lung cancer community.

OBJECTIVE:
The objective of this survey is to explore the quality of life of people affected by lung cancer and the impact of the disease on their daily lives, as well as their specific care and support needs throughout the disease journey.

Quality of life refers to how a person feels about their overall well-being and daily life. It includes physical health, emotional well-being, relationships, the ability to carry out everyday activities, and participation in work, social, and family life. Your participation will help identify priorities and support needs, in order to highlight opportunities for improving care and support systems.

SURVEY PARTICIPANTS:
  • This survey is open to adults (18 years and older) diagnosed with lung cancer and to adults supporting or who have supported someone with the disease in Europe (excluding healthcare professionals and paid support roles).
  • Your participation in this survey is anonymous and will take you approximately 15 minutes. You will not be asked for your name or any identifiable information, and you will not be identifiable from the results. There are no right or wrong answers in this survey, and you are free to choose which questions you wish to answer. However, we do encourage you to complete the whole questionnaire to give us a full picture of your experience.
  • If you are or were a caregiver (family member, friend, or relative—not a healthcare professional or in a paid support role), please answer the survey based on your own experiences and opinions, rather than on behalf of your loved one who has been diagnosed with lung cancer.
ABOUT LUNG CANCER EUROPE:
This project is led by Lung Cancer Europe. This is a non-profit umbrella organisation that serves as the voice of Europeans impacted by or at risk of lung cancer. Currently, Lung Cancer Europe represents 48 members working together for the lung cancer community in 28 countries. The report will be open access and available on the Lung Cancer Europe website in March 2027: www.lungcancereurope.eu.

DATA PROTECTION AND PRIVACY:
Lung Cancer Europe is conducting this survey with the support of Fundación MÁS QUE IDEAS, which administers the survey through SurveyMonkey. Your responses will be treated confidentially and used for the purposes of this research, including analysis and related reporting. This may include the use of AI-assisted tools to support analysis. Results will be reported in a way that does not identify individual participants.

The information collected through this survey will be processed in accordance with applicable data protection legislation, including the General Data Protection Regulation (GDPR). You can find more information about how your data is collected, used and protected in the Lung Cancer Europe Privacy Policy and MÁS QUE IDEAS Privacy Policy.

We encourage you to contact us if you have any questions or comments. Thank you for your collaboration.

Lung Cancer Europe
info@lungcancereurope.eu - www.lungcancereurope.eu
1.I confirm that I am 18 years of age or older, have read the information above, and explicitly consent to participate in this survey and to the processing of the information I provide, including health-related information, for the purposes described above.(Required.)
2.If you agree to participate in this survey:

Are you a person living with lung cancer or a person who is caring or cared for someone with the disease?
(Required.)