ISPAD SCHOOL Special Interest Group Questionnaire

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* 1. BLOCK 1: INTRODUCTION

Which city are you from?

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* 2. Which country are you from?

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* 3. What is your profession? (Select all that apply)

Pediatric Endocrinologist/Diabetologist

Pediatrician or another General Practitioner

Endocrinologist

Advanced practice provider / nurse practitioner

Nurse

Dietitian

Diabetes Educator (certified)

Psychologist

Social worker

Other (specify)

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* 4. How many children and young people with type 1 diabetes (<18 years) does your team care for per year?

≤ 50

51-99

100-199

200-499

500-999

> 1000

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* 5. Up to what age may the diabetes care of young people take place in your center?

No upper limit

Years (specify)

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* 6. BLOCK 2: LEGAL STATUS OF CHILDREN WITH DIABETES IN SCHOOL IN YOUR COUNTRY

Does your country currently have any disability and/or anti-discrimination legislation that protects the legal rights of children with diabetes in school?

There is legislation, and it includes students with type 1 diabetes

There is legislation, but it does not explicitly include students with type 1 diabetes

There is no legislation at all

I don’t know

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* 7. Do all children with diabetes have the legal right to attend in-person school like all other children?

Yes

I don’t know

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* 8. If no, please specify

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* 9. Do all children with diabetes have the legal right to equal opportunities in school, such attending field trips and participating in extracurricular activities?

Yes

I don’t know

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* 10. If NO is selected, please explain

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* 11. Do all children with diabetes have the legal right to assistance with diabetes care in school from a trained member of the school staff?

Yes, all children receive assistance

Yes, but for children within a certain age range only

Yes, but only in case of acute complication/ emergency

I don’t know

Other regulation in place (please explain)

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* 12. Do all children with diabetes have the legal right to self-manage their diabetes in school, including carrying their own supplies, if approved by their parent and medical team?

Yes, all children can self-manage

Yes, but for children within a certain age range only

I don’t know

Other regulation in place (please explain)

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* 13. Are non-health care school staff (e.g., teachers) permitted to administer insulin (injection or pump) to children with diabetes in school?

Yes

I don’t know

Other regulation in place (please explain)

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* 14. Are non-health care school staff (e.g., teachers) permitted to administer glucagon to children with diabetes in school?

Yes

Yes for intranasal, no for injectable

I don’t know

Other regulation in place (please explain)

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* 15. Do the same legal regulations apply for private schools as for public schools in your country?

Yes

I don’t know

Other regulation in place (please explain)

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* 16. BLOCK 3: Your experience with diabetes care in schools

These questions are asking about your practical experiences as a medical provider involved in the care of children with diabetes in school, not the laws in your country or state/province. This includes whether children are provided any assistance for diabetes care by school staff and what kind of support is offered. Please consider the children with diabetes who are part of your clinic population.

In your experience, will any school staff member ever assist a child with diabetes management tasks in school?

Yes, all children receive assistance

Depends on the school, most schools will assist

Depends on the school, most schools will not assist

Only children within a certain age range receive assistance

No child receives assistance

I don’t know

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* 17. In your experience, do school staff help children with diabetes in school with insulin administration (by injection and/or insulin pump)?

Yes, all children receive help

Depends on the school, most schools will help

Depends on the school, most schools will not help

Only children within a certain age range receive help

No child receives help

I don’t know

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* 18. In your experience, do school staff help children with diabetes in school with checking a blood glucose level by finger pricks?

Yes, all children receive help

Depends on the school, most schools will help

Depends on the school, most schools will not help

Only children within a certain age range receive help

No child receives help

I don’t know

N/A – children would not be checking blood glucose level by finger pricks in school

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* 19. In your experience, do school staff help children with diabetes in school with reviewing continuous glucose sensor readings?

Yes, all children receive help

Depends on the school, most schools will help

Depends on the school, most schools will not help

Only children within a certain age range receive help

No child receives help

I don’t know

N/A – continuous glucose sensors are largely not available in my country

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* 20. In your experience, do school staff help children with diabetes in school with troubleshooting insulin pumps (e.g., responding to alerts or technical problems)?

Yes, all children receive help

Depends on the school, most schools will help

Depends on the school, most schools will not help

Only children within a certain age range receive help

No child receives help

I don’t know

N/A – insulin pumps are largely not available in my country

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* 21. In your experience, do school staff help children with diabetes with carbohydrate counting for meals and snacks in school?

Yes, all children receive help

Depends on the school, most schools will help

Depends on the school, most schools will not help

Only children within a certain age range receive help

No child receives help

I don’t know

N/A – children do not routinely practice carbohydrate counting in my country

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* 22. BLOCK 4: Education and training

These questions ask about who participates in the school-based management of diabetes and how education, training, and assistance is provided to school staff in your country

Do schools in your country or region have nurses (or other health care professional) that can help children with their diabetes tasks (glucose monitoring/injecting and dosing insulin/carb counting?

Yes, all schools do

Yes, about half of the schools do

Yes, a few schools do

I don’t know

Other

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* 23. Do those school nurses (or other health care professional) assist children with their diabetes tasks (glucose monitoring/injecting and dosing insulin/carb counting?

Yes, all school nurses do

Yes, about half of the school nurses do

Yes, a few schools nurses do

I don’t know

In our country/region there are no school nurses

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* 24. Who is mainly involved in assisting young children with "diabetes tasks" in school?

School staff (health care provider)

School staff (not health care provider)

Community nurse / social assistance from outside

Parent

Child is on their own

Other

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* 25. Are these individuals routinely trained in diabetes management?

Yes

I don’t know

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* 26. Are these individuals insured in case they make a mistake?

Yes, through the employer, school, government

They must insure themselves (private liability)

There is no insurance

I don’t know

Other

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* 27. How do school staff receive education or training to support children with diabetes in school?

Select all that apply; do not answer this question if your choice in question 24, was "community nurse"

The medical team provides training

The parent of the child provides training

The school system (including government agencies) provide training

No training is provided

I don’t know

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* 28. How do you/your medical team provide this training?

Select all that apply; do not answer this question if your choice in question 24, was "community nurse".

We do school visits

We invite school staff to in-person seminars

We do live, online seminars

We make available online educational materials (e.g., videos, handouts)

Other

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* 29. Does your medical team use the IDF KiDS Program and resources to educate school staff about caring for children with type 1 diabetes?

Do not answer this question if your choice in question 24, was "community nurse"

Yes

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* 30. If No – Do you use other resources? Which one? (Do not answer this question if your choice in question 24, was "community nurse")

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* 31. Who pays for the diabetes training of the school staff?

Select all that apply; do not answer this question if your choice in question 24, was "community nurse"

National Health care system

Child’/family’s health insurance

School system (including related government agencies)

Social services

Child’s parents/family

Patient organization / Charity

Team members voluntary personal donation

There is no payment for this training

Other

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* 32. Does your medical team provide children with diabetes an individual Diabetes Management Plan, updated at least once per year?

Yes, the majority of children with diabetes

Yes, about half of the children with diabetes

Yes, but only a minority of the children with diabetes

No, please explain:

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* 33. Is a member of your medical team available to answer questions from school staff about diabetes management in real time during the school day?

Yes

I don’t know

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* 34. BLOCK 5: Social issues and legal rights

Have children in your care ever been refused entry to a school for reasons related to their diabetes?

Yes, in rare exceptions

Yes, in around 10% of the children with diabetes

Yes, in more than 10% of the children with diabetes

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* 35. If your answer to question 34 was "yes" in any form, please answer questions 35 & 36.

What were the reasons (if known)?

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* 36. How did you resolve these problems, if able?

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* 37. Have children in your care been exposed to bullying in school because of their diabetes?

No, not to my knowledge

Yes, in rare exceptions

Yes, in around 10% of the children with diabetes

Yes, in more than 10% of the children with diabetes

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* 38. If your answer to question 37 was "yes" in any form, please answer question 38 & 39.

What were the reasons (if known)?

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* 39. How were these children supported by your diabetes team?

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* 40. Have children in your care been unable to participate in school trips and/or camps because of their diabetes?

Yes, in rare exceptions

Yes, in around 10% of the children with diabetes

Yes, in more than 10% of the children with diabetes

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* 41. If your answer to question 40 was "yes" in any form, please answer question 41 & 42.

What were the reasons (if known)?

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* 42. How were these children supported by your diabetes team?

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* 43. Have children in your care experienced any limitations in being allowed to exercise in school?

Yes, in rare exceptions

Yes, in around 10% of the children with diabetes

Yes, in more than 10% of the children with diabetes

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* 44. If your answer to question 43 was "yes" in any form, please answer question 44 & 45.

What were the reasons (if known)?

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* 45. How were these children supported by your diabetes team?

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* 46. Do children with diabetes have access to glucagon in school?

Yes, all children with diabetes

Yes, majority of children with diabetes

Yes, about half of the children with diabetes

Yes, but only a minority of the children with diabetes

No (please explain the reason):

N/A – children do not routinely have access to glucagon in my country

Question Title

* 47. BLOCK 6: Future perspectives on diabetes care in school

Are you aware of the 2018 ISPAD Position Statement on the management of children and adolescents with diabetes in school?

Yes

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* 48. How important are the following topics for you?

Passage of legal regulations to support diabetes care in school nationwide

Not an issue in my country

Less important

Median important

Most important

Not an issue in my country

Less important

Median important

Most important

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* 49. Adherence to existing legal rights for all children with diabetes to attend school

Not an issue in my country

Less important

Median important

Most important

Not an issue in my country

Less important

Median important

Most important

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* 50. Adherence to legal rights for children with diabetes to participate in all school activities

Not an issue in my country

Less important

Median important

Most important

Not an issue in my country

Less important

Median important

Most important

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* 51. Available school nurses / other health care providers in schools

Not an issue in my country

Less important

Median important

Most important

Not an issue in my country

Less important

Median important

Most important

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* 52. Basic diabetes education of all school staff

Not an issue in my country

Less important

Median important

Most important

Not an issue in my country

Less important

Median important

Most important

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* 53. Comprehensive training for school staff who care for children with diabetes specifically

Not an issue in my country

Less important

Median important

Most important

Not an issue in my country

Less important

Median important

Most important

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* 54. Education of school staff about new diabetes technologies, specifically

Not an issue in my country

Less important

Median important

Most important

Not an issue in my country

Less important

Median important

Most important

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* 55. Reimbursement of diabetes education for school staff

Not an issue in my country

Less important

Median important

Most important

Not an issue in my country

Less important

Median important

Most important

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* 56. Insurance for school staff who are supporting children with diabetes

Not an issue in my country

Less important

Median important

Most important

Not an issue in my country

Less important

Median important

Most important

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* 57. Reimbursement for a school-allocated glucagon-kit with prescription

Not an issue in my country

Less important

Median important

Most important

Not an issue in my country

Less important

Median important

Most important

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* 58. Accessible educational materials and tools to help train school staff

Not an issue in my country

Less important

Median important

Most important

Not an issue in my country

Less important

Median important

Most important

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* 59. Political/societal awareness of the challenges and needs of children with diabetes in school

Not an issue in my country

Less important

Median important

Most important

Not an issue in my country

Less important

Median important

Most important

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* 60. How do you think ISPAD could help to improve the situation for children with diabetes in school in your country?

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* 61. Are you or other members of your Health Care Team interested, to lead a program to improve management at school for children with T1D in your country/region?

ISPAD SCHOOL Special Interest Group Questionnaire

Question Title

* 1. BLOCK 1: INTRODUCTIONWhich city are you from?

Question Title

* 2. Which country are you from?

Question Title

* 3. What is your profession? (Select all that apply)

Question Title

* 4. How many children and young people with type 1 diabetes (<18 years) does your team care for per year?

Question Title

* 5. Up to what age may the diabetes care of young people take place in your center?

Question Title

* 6. BLOCK 2: LEGAL STATUS OF CHILDREN WITH DIABETES IN SCHOOL IN YOUR COUNTRYDoes your country currently have any disability and/or anti-discrimination legislation that protects the legal rights of children with diabetes in school?

Question Title

* 7. Do all children with diabetes have the legal right to attend in-person school like all other children?

Question Title

* 8. If no, please specify

Question Title

* 9. Do all children with diabetes have the legal right to equal opportunities in school, such attending field trips and participating in extracurricular activities?

Question Title

* 10. If NO is selected, please explain

Question Title

* 11. Do all children with diabetes have the legal right to assistance with diabetes care in school from a trained member of the school staff?

Question Title

* 12. Do all children with diabetes have the legal right to self-manage their diabetes in school, including carrying their own supplies, if approved by their parent and medical team?

Question Title

* 13. Are non-health care school staff (e.g., teachers) permitted to administer insulin (injection or pump) to children with diabetes in school?

Question Title

* 14. Are non-health care school staff (e.g., teachers) permitted to administer glucagon to children with diabetes in school?

Question Title

* 15. Do the same legal regulations apply for private schools as for public schools in your country?

Question Title

Question Title

* 17. In your experience, do school staff help children with diabetes in school with insulin administration (by injection and/or insulin pump)?

Question Title

* 18. In your experience, do school staff help children with diabetes in school with checking a blood glucose level by finger pricks?

Question Title

* 19. In your experience, do school staff help children with diabetes in school with reviewing continuous glucose sensor readings?

Question Title

* 20. In your experience, do school staff help children with diabetes in school with troubleshooting insulin pumps (e.g., responding to alerts or technical problems)?

Question Title

* 21. In your experience, do school staff help children with diabetes with carbohydrate counting for meals and snacks in school?

Question Title

Question Title

* 23. Do those school nurses (or other health care professional) assist children with their diabetes tasks (glucose monitoring/injecting and dosing insulin/carb counting?

Question Title

* 24. Who is mainly involved in assisting young children with "diabetes tasks" in school?

Question Title

* 25. Are these individuals routinely trained in diabetes management?

Question Title

* 26. Are these individuals insured in case they make a mistake?

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* 27. How do school staff receive education or training to support children with diabetes in school? Select all that apply; do not answer this question if your choice in question 24, was "community nurse"

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* 28. How do you/your medical team provide this training? Select all that apply; do not answer this question if your choice in question 24, was "community nurse".

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* 29. Does your medical team use the IDF KiDS Program and resources to educate school staff about caring for children with type 1 diabetes? Do not answer this question if your choice in question 24, was "community nurse"

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* 30. If No – Do you use other resources? Which one? (Do not answer this question if your choice in question 24, was "community nurse")

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* 31. Who pays for the diabetes training of the school staff? Select all that apply; do not answer this question if your choice in question 24, was "community nurse"

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* 32. Does your medical team provide children with diabetes an individual Diabetes Management Plan, updated at least once per year?

Question Title

* 33. Is a member of your medical team available to answer questions from school staff about diabetes management in real time during the school day?

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* 34. BLOCK 5: Social issues and legal rightsHave children in your care ever been refused entry to a school for reasons related to their diabetes?

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* 35. If your answer to question 34 was "yes" in any form, please answer questions 35 & 36. What were the reasons (if known)?

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* 36. How did you resolve these problems, if able?

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* 37. Have children in your care been exposed to bullying in school because of their diabetes?

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* 38. If your answer to question 37 was "yes" in any form, please answer question 38 & 39.What were the reasons (if known)?

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* 39. How were these children supported by your diabetes team?

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* 40. Have children in your care been unable to participate in school trips and/or camps because of their diabetes?

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* 1. BLOCK 1: INTRODUCTION

Which city are you from?

* 6. BLOCK 2: LEGAL STATUS OF CHILDREN WITH DIABETES IN SCHOOL IN YOUR COUNTRY

Does your country currently have any disability and/or anti-discrimination legislation that protects the legal rights of children with diabetes in school?

* 27. How do school staff receive education or training to support children with diabetes in school?

Select all that apply; do not answer this question if your choice in question 24, was "community nurse"

* 28. How do you/your medical team provide this training?

Select all that apply; do not answer this question if your choice in question 24, was "community nurse".

* 29. Does your medical team use the IDF KiDS Program and resources to educate school staff about caring for children with type 1 diabetes?

Do not answer this question if your choice in question 24, was "community nurse"

* 31. Who pays for the diabetes training of the school staff?

Select all that apply; do not answer this question if your choice in question 24, was "community nurse"

* 34. BLOCK 5: Social issues and legal rights

Have children in your care ever been refused entry to a school for reasons related to their diabetes?

* 35. If your answer to question 34 was "yes" in any form, please answer questions 35 & 36.

What were the reasons (if known)?

* 38. If your answer to question 37 was "yes" in any form, please answer question 38 & 39.

What were the reasons (if known)?

* 41. If your answer to question 40 was "yes" in any form, please answer question 41 & 42.

What were the reasons (if known)?

* 44. If your answer to question 43 was "yes" in any form, please answer question 44 & 45.

What were the reasons (if known)?

* 47. BLOCK 6: Future perspectives on diabetes care in school

Are you aware of the 2018 ISPAD Position Statement on the management of children and adolescents with diabetes in school?

* 48. How important are the following topics for you?

Passage of legal regulations to support diabetes care in school nationwide