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ISPAD
SCHOOL Special Interest Group Questionnaire
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1.
BLOCK 1: INTRODUCTION
Which city are you from?
(Obligatorio).
*
2.
Which country are you from?
(Obligatorio).
*
3.
What is your profession? (Select all that apply)
(Obligatorio).
Pediatric Endocrinologist/Diabetologist
Pediatrician or another General Practitioner
Endocrinologist
Advanced practice provider / nurse practitioner
Nurse
Dietitian
Diabetes Educator (certified)
Psychologist
Social worker
Other (specify)
*
4.
How many children and young people with type 1 diabetes (<18 years) does your team care for per year?
(Obligatorio).
≤ 50
51-99
100-199
200-499
500-999
> 1000
*
5.
Up to what age may the diabetes care of young people take place in your center?
(Obligatorio).
No upper limit
Years (specify)
*
6.
BLOCK 2: LEGAL STATUS OF CHILDREN WITH DIABETES IN SCHOOL IN YOUR COUNTRY
Does your country currently have any disability and/or anti-discrimination legislation that protects the legal rights of children with diabetes in school?
(Obligatorio).
There is legislation, and it includes students with type 1 diabetes
There is legislation, but it does not explicitly include students with type 1 diabetes
There is no legislation at all
I don’t know
*
7.
Do all children with diabetes have the legal right to attend in-person school like all other children?
(Obligatorio).
Yes
No
I don’t know
8.
If no, please specify
*
9.
Do all children with diabetes have the legal right to equal opportunities in school, such attending field trips and participating in extracurricular activities?
(Obligatorio).
Yes
No
I don’t know
10.
If NO is selected, please explain
*
11.
Do all children with diabetes have the legal right to assistance with diabetes care in school from a trained member of the school staff?
(Obligatorio).
Yes, all children receive assistance
Yes, but for children within a certain age range only
Yes, but only in case of acute complication/ emergency
No
I don’t know
Other regulation in place (please explain)
*
12.
Do all children with diabetes have the legal right to self-manage their diabetes in school, including carrying their own supplies, if approved by their parent and medical team?
(Obligatorio).
Yes, all children can self-manage
Yes, but for children within a certain age range only
No
I don’t know
Other regulation in place (please explain)
*
13.
Are non-health care school staff (e.g., teachers) permitted to administer insulin (injection or pump) to children with diabetes in school?
(Obligatorio).
Yes
No
I don’t know
Other regulation in place (please explain)
*
14.
Are non-health care school staff (e.g., teachers) permitted to administer glucagon to children with diabetes in school?
(Obligatorio).
Yes
Yes for intranasal, no for injectable
No
I don’t know
Other regulation in place (please explain)
*
15.
Do the same legal regulations apply for private schools as for public schools in your country?
(Obligatorio).
Yes
No
I don’t know
Other regulation in place (please explain)
*
16.
BLOCK 3: Your experience with diabetes care in schools
These questions are asking about your practical experiences as a medical provider involved in the care of children with diabetes in school, not the laws in your country or state/province. This includes whether children are provided any assistance for diabetes care by school staff and what kind of support is offered. Please consider the children with diabetes who are part of your clinic population.
In your experience, will any school staff member ever assist a child with diabetes management tasks in school?
(Obligatorio).
Yes, all children receive assistance
Depends on the school, most schools will assist
Depends on the school, most schools will not assist
Only children within a certain age range receive assistance
No child receives assistance
I don’t know
*
17.
In your experience, do school staff help children with diabetes in school with insulin administration (by injection and/or insulin pump)?
(Obligatorio).
Yes, all children receive help
Depends on the school, most schools will help
Depends on the school, most schools will not help
Only children within a certain age range receive help
No child receives help
I don’t know
*
18.
In your experience, do school staff help children with diabetes in school with checking a blood glucose level by finger pricks?
(Obligatorio).
Yes, all children receive help
Depends on the school, most schools will help
Depends on the school, most schools will not help
Only children within a certain age range receive help
No child receives help
I don’t know
N/A – children would not be checking blood glucose level by finger pricks in school
*
19.
In your experience, do school staff help children with diabetes in school with reviewing continuous glucose sensor readings?
(Obligatorio).
Yes, all children receive help
Depends on the school, most schools will help
Depends on the school, most schools will not help
Only children within a certain age range receive help
No child receives help
I don’t know
N/A – continuous glucose sensors are largely not available in my country
*
20.
In your experience, do school staff help children with diabetes in school with troubleshooting insulin pumps (e.g., responding to alerts or technical problems)?
(Obligatorio).
Yes, all children receive help
Depends on the school, most schools will help
Depends on the school, most schools will not help
Only children within a certain age range receive help
No child receives help
I don’t know
N/A – insulin pumps are largely not available in my country
*
21.
In your experience, do school staff help children with diabetes with carbohydrate counting for meals and snacks in school?
(Obligatorio).
Yes, all children receive help
Depends on the school, most schools will help
Depends on the school, most schools will not help
Only children within a certain age range receive help
No child receives help
I don’t know
N/A – children do not routinely practice carbohydrate counting in my country
*
22.
BLOCK 4: Education and training
These questions ask about who participates in the school-based management of diabetes and how education, training, and assistance is provided to school staff in your country
Do schools in your country or region have nurses (or other health care professional) that can help children with their diabetes tasks (glucose monitoring/injecting and dosing insulin/carb counting?
(Obligatorio).
Yes, all schools do
Yes, about half of the schools do
Yes, a few schools do
No
I don’t know
Other
*
23.
Do those school nurses (or other health care professional) assist children with their diabetes tasks (glucose monitoring/injecting and dosing insulin/carb counting?
(Obligatorio).
Yes, all school nurses do
Yes, about half of the school nurses do
Yes, a few schools nurses do
No
I don’t know
In our country/region there are no school nurses
*
24.
Who is
mainly
involved in assisting young children with "diabetes tasks" in school?
(Obligatorio).
School staff (health care provider)
School staff (not health care provider)
Community nurse / social assistance from outside
Parent
Child is on their own
Other
*
25.
Are these individuals routinely trained in diabetes management?
(Obligatorio).
Yes
No
I don’t know
*
26.
Are these individuals insured in case they make a mistake?
(Obligatorio).
Yes, through the employer, school, government
They must insure themselves (private liability)
There is no insurance
I don’t know
Other
*
27.
How do school staff receive education or training to support children with diabetes in school?
Select all that apply; do not answer this question if your choice in question 24, was "community nurse"
(Obligatorio).
The medical team provides training
The parent of the child provides training
The school system (including government agencies) provide training
No training is provided
I don’t know
28.
How do you/your medical team provide this training?
Select all that apply; do not answer this question if your choice in question 24, was "community nurse".
We do school visits
We invite school staff to in-person seminars
We do live, online seminars
We make available online educational materials (e.g., videos, handouts)
Other
29.
Does your medical team use the IDF KiDS Program and resources to educate school staff about caring for children with type 1 diabetes?
Do not answer this question if your choice in question 24, was "community nurse"
Yes
No
30.
If No – Do you use other resources? Which one?
(Do not answer this question if your choice in question 24, was "community nurse")
31.
Who pays for the diabetes training of the school staff?
Select all that apply; do not answer this question if your choice in question 24, was "community nurse"
National Health care system
Child’/family’s health insurance
School system (including related government agencies)
Social services
Child’s parents/family
Patient organization / Charity
Team members voluntary personal donation
There is no payment for this training
Other
*
32.
Does your medical team provide children with diabetes an individual Diabetes Management Plan, updated at least once per year?
(Obligatorio).
Yes, the majority of children with diabetes
Yes, about half of the children with diabetes
Yes, but only a minority of the children with diabetes
No, please explain:
*
33.
Is a member of your medical team available to answer questions from school staff about diabetes management in real time during the school day?
(Obligatorio).
Yes
No
I don’t know
*
34.
BLOCK 5: Social issues and legal rights
Have children in your care ever been refused entry to a school for reasons related to their diabetes?
(Obligatorio).
No
Yes, in rare exceptions
Yes, in around 10% of the children with diabetes
Yes, in more than 10% of the children with diabetes
35.
If your answer to question 34 was "yes" in any form, please answer questions 35 & 36.
What were the reasons (if known)?
36.
How did you resolve these problems, if able?
*
37.
Have children in your care been exposed to bullying in school because of their diabetes?
(Obligatorio).
No, not to my knowledge
Yes, in rare exceptions
Yes, in around 10% of the children with diabetes
Yes, in more than 10% of the children with diabetes
38.
If your answer to question 37 was "yes" in any form, please answer question 38 & 39.
What were the reasons (if known)?
39.
How were these children supported by your diabetes team?
*
40.
Have children in your care been unable to participate in school trips and/or camps because of their diabetes?
(Obligatorio).
No
Yes, in rare exceptions
Yes, in around 10% of the children with diabetes
Yes, in more than 10% of the children with diabetes
41.
If your answer to question 40 was "yes" in any form, please answer question 41 & 42.
What were the reasons (if known)?
42.
How were these children supported by your diabetes team?
*
43.
Have children in your care experienced any limitations in being allowed to exercise in school?
(Obligatorio).
No
Yes, in rare exceptions
Yes, in around 10% of the children with diabetes
Yes, in more than 10% of the children with diabetes
44.
If your answer to question 43 was "yes" in any form, please answer question 44 & 45.
What were the reasons (if known)?
45.
How were these children supported by your diabetes team?
*
46.
Do children with diabetes have access to glucagon in school?
(Obligatorio).
Yes, all children with diabetes
Yes, majority of children with diabetes
Yes, about half of the children with diabetes
Yes, but only a minority of the children with diabetes
No (please explain the reason):
N/A – children do not routinely have access to glucagon in my country
*
47.
BLOCK 6: Future perspectives on diabetes care in school
Are you aware of the 2018 ISPAD Position Statement on the management of children and adolescents with diabetes in school?
(Obligatorio).
Yes
No
*
48.
How important are the following topics for you?
Passage of legal regulations to support diabetes care in school nationwide
(Obligatorio).
Not an issue in my country
Less important
Median important
Most important
Not an issue in my country
Less important
Median important
Most important
*
49.
Adherence to existing legal rights for all children with diabetes to attend school
(Obligatorio).
Not an issue in my country
Less important
Median important
Most important
Not an issue in my country
Less important
Median important
Most important
*
50.
Adherence to legal rights for children with diabetes to participate in all school activities
(Obligatorio).
Not an issue in my country
Less important
Median important
Most important
Not an issue in my country
Less important
Median important
Most important
*
51.
Available school nurses / other health care providers in schools
(Obligatorio).
Not an issue in my country
Less important
Median important
Most important
Not an issue in my country
Less important
Median important
Most important
*
52.
Basic diabetes education of all school staff
(Obligatorio).
Not an issue in my country
Less important
Median important
Most important
Not an issue in my country
Less important
Median important
Most important
*
53.
Comprehensive training for school staff who care for children with diabetes specifically
(Obligatorio).
Not an issue in my country
Less important
Median important
Most important
Not an issue in my country
Less important
Median important
Most important
*
54.
Education of school staff about new diabetes technologies, specifically
(Obligatorio).
Not an issue in my country
Less important
Median important
Most important
Not an issue in my country
Less important
Median important
Most important
*
55.
Reimbursement of diabetes education for school staff
(Obligatorio).
Not an issue in my country
Less important
Median important
Most important
Not an issue in my country
Less important
Median important
Most important
*
56.
Insurance for school staff who are supporting children with diabetes
(Obligatorio).
Not an issue in my country
Less important
Median important
Most important
Not an issue in my country
Less important
Median important
Most important
*
57.
Reimbursement for a school-allocated glucagon-kit with prescription
(Obligatorio).
Not an issue in my country
Less important
Median important
Most important
Not an issue in my country
Less important
Median important
Most important
*
58.
Accessible educational materials and tools to help train school staff
(Obligatorio).
Not an issue in my country
Less important
Median important
Most important
Not an issue in my country
Less important
Median important
Most important
*
59.
Political/societal awareness of the challenges and needs of children with diabetes in school
(Obligatorio).
Not an issue in my country
Less important
Median important
Most important
Not an issue in my country
Less important
Median important
Most important
60.
How do you think ISPAD could help to improve the situation for children with diabetes in school in your country?
61.
Are you or other members of your Health Care Team interested, to lead a program to improve management at school for children with T1D in your country/region?
62.
Please contact us: (Your name; E-Mail)
